Sickle Cell Data and Reports

A Snapshot of Sickle Cell Disease and Sickle Cell Trait in Minnesota (PDF)

Sickle cell disease (SCD) is a group of conditions that affect the red blood cells making them hard, sticky, and shaped like crescent moons or sickles. People with sickle cell disease often experience intense pain and anemia because of their abnormal red blood cells and may face adverse health outcomes such as a reduced life expectancy. While most people with sickle cell trait (SCT) do not have clinical symptoms, knowing they have SCT is important for reproductive choices. 

The disparities faced by people with SCD has made understanding and addressing these disparities a public health priority. In partnership with the Sickle Cell Foundation of Minnesota, individuals living with SCD, health care providers, and others, the Minnesota Department of Health is committed to providing information, programs, and resources to the SCD community and the medical providers who care for them.

For more information on the different types of sickle cell disease, visit About Sickle Cell Disease - MN Dept. of Health.

Sources: Minnesota Department of Health Longitudinal Follow-up Program. 

Explore additional data on sickle cell disease in Minnesota and nationally.

Minnesota

MDH and partners are working to learn more about SCD in Minnesota. We will share more data as we have it available.

• MDH: Sickle Cell Disease-Related Hospital Encounters (PDF)
• MDH: Newborn Screening Data Summaries
• MDH: Long Term Follow-up of Children Identified with Sickle Cell Disease (SCD) through Newborn Screening, 2013-2018 (PDF)
• CDC: Newborn Screening Data, Minnesota, 2016-2020

National

• American Heart Association: Sickle Cell Disease and Pediatric Stroke Risk
• American Society of Hematology (ASH)
• CDC: Data and Statistics on Sickle Cell Disease
• CDC: Sickle Cell Data Collection Program
• Annals of Emergency Medicine: Trends in Sickle Cell Disease-Related Mortality in the United States, 1979 to 2017.
• CDC MMWR: Birth Prevalence of Sickle Cell Disease and County-Level Social Vulnerability—Sickle Cell Data Collection Program, 11 States, 2016-2020
• Improving the Lives of People with Sickle Cell Disease: Community Organizations and Epidemiologists Working Together (PDF)